endometriosis Patient

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Johnny Oil
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endometriosis Patient

Post by Johnny Oil »

I have endometriosis. A disease that is overlooked and a lot of people never heard of it or don't know the full extent of it. It affects millions of women. It has the potential to take over your life. It has mine.
I Had my first surgery in 2010 And this past year I was misdiagnosed 3 times before my fourth visit with Baptist East ER. He took extra steps and made phone calls to find out the problem. June of this year I had a second surgery but that surgeon wasn't prepared for how much endometriosis has grown inside me. He removed what he could plus some stomach muscle and then sent me onto an OBGYN and then he passed me onto an oncologist gynecologist. ....after a cancer scare (which I don't have) I am scheduled for another surgery March 28th at Suburban hospital to have my ovaries removed. And after that surgery I am being referred to an endometriosis specialist because even after surgeries it is just putting a band aid on it and it will come back.
There is no cure for this disease. I am miserable, always in pain. I feel like I am on the worst period ever while being nine months pregnant. I'm neither one. My stomach gets so swollen and hard at times that people ask me numerous times when I'm due. This disease has affected me job wise...relationship with friends...just my daily living.
I sit in pain. I stand in pain. I lay in pain. I'm so sick of it and my mood and outlook on life has changed drastically. I just want people to be more informed of something that people have no clue about. I'm still learning new things about it. I have found support groups online and that is what has helped keep me somewhat sane. I have also started a GoFundMe page because I have lost my job and even when I had a job I missed so many days from the horrible pain.
Claudette Term
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Re: endometriosis Patient

Post by Claudette Term »

To whom this may concern,
Hello my name is Alyssa. I am a 36 year old female, and I am disabled. I am in the process of applying for SSDI/SSI, but unfortunately have been told by social security that I can't even get a part time job, while my application is under review. I have an upcoming appointment for endometriosis treatment, so things are thankfully moving but in the meantime, I have NO INCOME except that of my roommate situation, and he has already given his portion of the rent. I have no help, financially, except for the kindness of strangers.
I have endometriosis, a blood platelet condition called ITP, These are only two of my conditions that prevent me from working.
I'm terrified I'm going to end up on the street for Christmas!
I'm not sure what all you can do to help but I don't owe alot for my portion of rent, so any help would be greatly appreciated!
I look forward to hearing from you.
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